Shine is a charity that covers all of England (as well as Wales and NI) supporting people who have Spina Bifida, Hydrocephalus, and related conditions. Shine offers advice and information for families living with these conditions and for people who have just had a diagnosis and are not sure what to do.
If you are pregnant and have just received a diagnosis of spina bifida, hydrocephalus, encephalocele, or anencephaly, or if you have spina bifida or hydrocephalus yourself, live with, care for, or work with someone who has it, you’ll find useful resources on their website. And if you have any questions or need further help, you can contact Shine using their website form, phone, or email to learn more about the help and support available.